I was born in Southern California and have lived here my whole life. I have enjoyed hiking on all sorts of local trails for the past 20 years.
In July 2014, I had a very very strange summer flu come on quickly that lasted about 7 days. During this whole time it felt like my bones in my legs were breaking, I couldn’t keep any food down, I had a high fever, stiff neck, and headaches.
In early 2015 I noticed a debilitating fatigue I had been having for no reason was getting worse and worse for a while.
In March of 2016, I received many many spider and mosquito bites all over my arms and legs while hiking on an overgrown chaparral covered trail.
Then in April 2016, I started having severe swelling and pain in my hands at first, then I had intense burning pain in my feet, knees, hips, shoulders, elbows, wrists…you name it. My hands and feet would alternate between being numb and having sharp stabbing pains.
The strange thing in my case was the pain and swelling always became most intense at night, getting worse and worse as the sun went down until I couldn’t function.
Lyme was not diagnosed until October 2016 (but I refused to believe it at first so I did not start treating it for almost 6 more months).
I started antibiotic treatment in February 2017 under the supervision of a “Lyme Literate MD” (LLMD). I do not think I would be alive today if it was not for her.
I go hiking almost everyday and have loved hiking all around So Cal over the past 20 years, but I especially love to spend time in the Santa Monica Mountains. I think this is how I contacted Lyme, but there is no way to really be sure.
There is nothing I take for certain anymore. My savings is gone. My credit cards are maxed. NO one recognizes the severity of Lyme disease, it can really kill.
My health insurance won’t even pay for my treatment. Every aspect of my life is worse, being so worn out all the time has ruined all of my relationships, and destroyed my hopes and dreams of a positive secure future.
I still go for hikes these days, but I hike a lot shorter distances and am on a much slower pace. I believe walking every day was helpful for my healing. These days I stay off the overgrown single track trails though and stick to the big wide fire roads.
I am trying to chronologically document my experience with Lyme in a series of posts HERE; frankly, sometimes it’s difficult putting words together or finding cohesion in my words, so I apologize if this annoys you, but I am doing the best I can with my Lyme addled brain.